Our daughter, Coral, was born on July 28th, 2016. Three days later she stopped breathing. After numerous tests that returned as “normal”, the genetic testing report showed that she had a rare chromosomal duplication, Dup 15q. Dup 15q is characterized by: seizure disorders, gross motor delays, cognitive delays, autism spectrum disorders, absent or poor expressive language, sensory processing disorders, as well as a variety of other issues. My husband and I were shocked by this diagnosis. During the days and weeks that followed, we felt tremendous grief, as we mourned the loss of the Coral we had always imagined.
Today (only 3 months after receiving the diagnosis) we already see so much light, instead of just darkness. The love, support, and prayers we have received have provided us with strength and healing. We are on an unexpected path, and we want to share our journey with you. Coral’s journey. We are forever changed in the most beautiful way.
Coral is Coral, not Dup 15q. She is our Super DUPer! And this is our story.
“When you get to the end of all the light you know and it’s time to step into the darkness of the unknown, faith is knowing that one of two things shall happen: either you will be given something solid to stand on, or you will be taught how to fly.” -Edward Teller
2 thoughts on “Coral’s Journey- Our Journey”
Dana shared your blog with me tonight. I read your entries with tears, smiles and a reminder that God is in control–always!! Thanks for sharing your heart. Coral is beautiful and I’ll continue to pray for her and all of you. Wishing you a blessed holiday as you share this first Christmas with Coral.
Thank you for reading the blog, for your thoughts, and your prayers. We have a strong village behind Coral and our family- that makes such a difference. I look forward to Coral meeting you one day (hopefully sooner rather than later). Enjoy your Christmas holiday!